What happens to your data and how is it protected?
Your data will be used exclusively for the purpose described above. The answers are evaluated and stored at the German Cancer Research Center (DKFZ) in Germany (Heidelberg), the Technical University Munich and Helmholtz Munich. Optionally, we ask you to provide us with your name and email address so we can contact you with further questions in regards to improving GHGA services and products. No other questions will ask you to provide personal information or any data that could be used to identify you. If you choose not to enter contact information, the survey will be completely anonymousanonymised.
The individual results of this survey will not be published and only used for internal purposes to optimise GHGA products and services. In addition we might publish results of the services in an aggregated form, which contain no personal information linked to the individuals who have completed the survey.
What data protection rights do you have?
The legal basis for data processing is your consent under Articles 6 (1) (a) of the General Data Protection Regulation (GDPR). The data controller within the meaning of Article 4 GDPR is the DKFZ.
You have the right to withdraw your consent at any time without giving reasons by clicking on "Leave survey and delete answers" (top right in the header on each page of the questionnaire). In this case, all information you have provided up to that point will be deleted.
In case you decide to not share your optional personal information with the survey, after the questionnaire has been submitted in full, it is no longer possible to withdraw your consent, as the individual questionnaires and data cannot be assigned personally. For this reason, you will no longer be able to obtain information about the data stored by the DKFZ after this point and you will not be able to request subsequent deletion, correction or restriction of their processing.
If you do share personal data with GHGA through this survey, you will have a number of rights under the GDPR that you may be entitled to exercise:
Article 15 - You have the right to request information about the processing of your personal data. You may also request access to a copy of the data.
Article 16 - You can request that GHGA correct any inaccuracies in the personal data you have provided.
Article 17 - You have the right to request that GHGA erases your personal data.
Article 18 - You can request that GHGA only processes your data in a restricted manner.
Article 20 - If you ask GHGA to provide a copy of your data it must be shared in a commonly used format. You can also request that GHGA transfers your personal data to another data controller.
If you have any concerns about data processing and data protection compliance, you can contact the Data Protection Officer of the German Cancer Research Center:
Data Protection Officer
German Cancer Research Center
Im Neuenheimer Feld 280
Phone: 06221 / 420
You have a right of appeal to any data protection supervisory authority under Articles 14 and 77 of the GDPR. You may also seek judicial remedy against GHGA if your data protection rights are violated under Article 79 GDPR. A list of the supervisory authorities in Germany can be found at:
Participation in this survey is voluntary.